OVERRIDE

The Boy in the Moon

A Father's Journey to Understand His Extraordinary Son

Ian Brown

St. Martin's Press

A New York Times Top 10 Book of 2011

“[A]n intimate glimpse into the life of a family that cares around the clock for a disabled child, that gets so close to the love and despair, and the complex questions the life of such a child raises...It is a beautiful book, heartfelt and profound, warm and wise.”
                                     —Jane Bernstein, author of Loving Rachel and Rachel in the World


Ian Brown’s son Walker is one of only about 300 people worldwide diagnosed with cardiofaciocutaneous (CFC) syndrome—an extremely rare genetic mutation that results in unusual facial appearance, the inability to speak, and a compulsion to hit himself constantly. At age thirteen, he is mentally and developmentally between one and three years old and will need constant care for the rest of his life.

Brown travels the globe, meeting with genetic scientists and neurologists as well as parents, to solve the questions Walker’s doctors can’t answer. In his journey, he offers an insightful critique of society’s assumptions about the disabled, and he discovers a connected community of families living with this illness. As Brown gradually lets go of his self-blame and hope for a cure, he learns to accept the Walker he loves, just as he is.

Honest, intelligent, and deeply moving, The Boy in the Moon explores the value of a single human life.


BOOK EXCERPTS

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THE BOY IN THE MOON (Chapter One)

For the first eight years of Walker’s life, every night is the same. The same routine of tiny details, connected in precise order, each mundane, each crucial.

The routine makes the eight years seem long, almost endless, until I try to think about them afterwards, and then eight years evaporate to nothing, because nothing has changed.

Tonight I wake up in the dark to a steady, motorized noise. Something wrong with the water heater. Nnngah. Pause. Nnngah. Nnngah.

But it’s not the water heater. It’s my boy, Walker, grunting as

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REVIEWS

Praise for The Boy in the Moon

"A father’s candid, heart-wrenching account of raising, loving and trying to connect with and gain insight into his severely disabled son...Much more than a moving journal of life with a disabled child; it is about Brown’s quest to understand his son and his son’s condition...An absorbing, revealing work of startling frankness."--Kirkus Reviews
 
“The truth Brown learns from his severely disabled child is a rare one: The life that seems to destroy you is the one you long to embrace.”--New York Times Book Review

"Unforgettable...Crisp, observant and, occasionally, subversively funny...In the end, as in the beginning, Brown questions the value of a life like Walker's, "lived in the twilight and often in pain." He sometimes locates it in Walker himself. Another answer is this book."--Cleveland Plain Dealer

 
"Honest and deeply moving."--Tucson Citizen

In the Press

THE BOY IN THE MOON by Ian BrownKirkus Book Reviews
Read the Kirkus Review of THE BOY IN THE MOON A Father's Journey to Understand His Extraordinary Son. A father's candid, heart-wrenching account of raising, loving and trying to connect with and gain insight into his severely disabled son.
- Kirkus Reviews

Reviews from Goodreads

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ABOUT THE AUTHOR

  • Ian Brown

  • IAN BROWN is an author and a feature writer for The Globe and Mail. The Boy in the Moon has won three of Canada’s most prestigious literary awards: the Charles Taylor Prize, the Trillium Book Award, and the British Columbia National Book Award for Nonfiction.

  • Ian Brown Ken Blaze

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The Boy in the Moon

A Father's Journey to Understand His Extraordinary Son

Ian Brown

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FROM THE PUBLISHER

St. Martin's Press

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