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Cure Unknown

Inside the Lyme Epidemic

St. Martin's Press, Published: June 2008, ISBN: 978-0-312-37812-7, ISBN-10: 0-312-37812-2,Trim: 6 1/8 x 9 1/4 inches, 432 pages

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A groundbreaking and controversial narrative investigation into the science, history, medical politics, and patient experience of Lyme disease told by a science journalist whose entire family contracted the disease.

Pamela Weintraub paints a nuanced picture of the intense controversy and crippling uncertainty surrounding Lyme disease and sheds light on one of the angriest medical disputes raging today. She also reveals her personal odyssey through the land of Lyme after she, her husband and their two sons became seriously ill with the disease beginning in the 1990s.

From the microbe causing the infection and the definition of the disease, to the length and type of treatment and the kind of practitioner needed, Lyme is a hotbed of contention. With a CDC-estimated 200,000-plus new cases of Lyme disease a year, it has surpassed both AIDS and TB as the fastest-spreading infectious disease in the U.S. Yet alarmingly, in many cases, because the disease often eludes blood tests and not all patients exhibit the classic "bulls-eye" rash and swollen joints, doctors are woefully unable or unwilling to diagnose Lyme. When that happens, once-treatable infections become chronic, inexorably disseminating to cause disabling conditions that may never be cured.

Weintraub reveals why the Lyme epidemic has been allowed to explode, why patients are dismissed, and what can be done to raise awareness in the medical community and find a cure. The most comprehensive book ever written about the past, present and future of Lyme disease, this exposes the ticking clock of a raging epidemic.

New York Times Piece:

http://www.nytimes.com/2008/07/15/health/15brod.html?_r=1&ref=health&oref=slogin

Print & Online Features:

An interview with Pamela Weintraub will appear on Time Mgazine’s Website in July.

The New York Times website will also run an interview with Pamela Weintraub in September.

Reviews for CURE UNKNOWN in:
Discover magazine (June issue)
The Washington Post (ran June 15^th)
Sacramento Bee (ran June 15^th)
Philadelphia Weekly (date tk)
Hartford Courant (July 13^th)
Boston Globe (date tk).

An excerpt for CURE UNKNOWN ran in Psychology Today (May issue).

Pamela Weintraub has done interviews for:

WNYC (NPR) “Leonard Lopate Show” 7/1
Wisconsin Public Radio “Conversations with Joy Cardin” (nationally syndicated) 7/2

NPR “Talk of the Nation” (book was mentioned in a discussion on summer books, June 16)

Praise

“Pamela Weintraub's book is compelling, clear and troubling.”
–Patti Adcroft, editorial director of Discover magazine

“In Cure, Unknown, Pamela Weintraub has produced both the definitive book about Lyme disease and associated disorders and a survivor’s account of a grueling medical odyssey. Weintraub is a masterful science writer and storyteller, and she tackles the quarrels and quagmires surrounding this baffling illness with intelligence and pathos. This is an important and unforgettable book, destined to make a lasting contribution to the field of investigative health journalism.”
–Kaja Perina, editor in chief of Psychology Today

"A thoroughly researched and well-written account of the disease's controversial history."

--Jane Brody, New York Times

"Pam Weintraub, veteran science writer, weaves personal narrative with hard-hitting investigative journalism to bring the underground epidemic of Lyme and other tick-borne diseases up from under the

radar."

-Rebecca Wells, author of Ya-Yas in Bloom and Divine Secrets of the Ya-Ya Sisterhood.

"I sometimes wonder if the only investigative writers who will possess the necessary temerity to remove the white gloves and tackle these putative experts to the ground will be those, like Weintraub and the

late Randy Shilts, whose personal experience demands that they follow the rocky trail that leads to the truth."

-Hillary Johnson, author of Osler's Web: Inside the Labyrinth of the Chronic Fatigue Syndrome

Epidemic

"Millions suffering from symptoms of a mysterious disease need suffer confusion and loss no longer. If you want to know the real story behind Lyme disease and how to find your way back to health, read this book."

-Mark Hyman, MD, author of the New York Times bestseller, UltraMetabolism.

"Science journalism at its best."

--Amiram Katz, MD, Clinical Faculty, Neurology Department, Yale School of Medicine

"Weintraub turns a tragic yet eye-opening experience into a shocking exposure of what can happen when egos, greed, and peer pressure supercede objective evidence, allowing patients to suffer chronic,

disabling illness."

–Donna Chavez, Booklist

"Exhaustively researched and highly recommended."

–Tina Neville, Library Journal

"A tale of biological complexities, scientific turf battles, political intrigue, human egos and money – lots of it."

–Dorothy Kupcha Leland, Sacramento Bee

"Living with Lyme gave Weintraub both the insight and the dogged ambition to find out some truths ... rather than remaining stuck at the pro-Lyme, anti-Lyme debate, Weintraub spent many hours

interviewing researchers who are experts in the ticks that spread Lyme, and the bacterial spirochete, Borrelia burgdorferi, that causes it. What she found is that these researchers -- at places like the

State University of New York at Stony Brook on Long Island, and the University of California at Davis -- are slowly figuring out how complex the bacteria and the disease are. And Weintraub said, these

researchers, by and large, confirm what many Lyme patients have learned through bitter experience -- the bacteria can cause a persistent infection that may not be treated easily by a couple of

weeks of antibiotics."

--Robert Miller, Danbury News-Times

"The view from inside the tick tornado: Sober but scary ...A science and health journalist, Weintraub writes clearly and passionately about a mysterious illness that has confounded physicians, patients and

scientists for more than three decades, while she tries to balance personal narrative and objective journalism... a comprehensive and compassionate guide to a dreaded illness named after a bucolic,

tick-infested town on Long Island Sound."

--Bill Williams, Hartford Courant

"In the war of information on Lyme disease, patient activist groups have started from a marked disadvantage to the medical establishment in terms of visibility and credibility. That may be changing, and science journalist Pamela Weintraub's new book, "Cure Unknown: Inside the Lyme Epidemic" (St. Martin's Press), could be one reason. Weintraub, a senior editor at Discover magazine, uses her family's protracted Lyme odyssey as the jumping off point for an exploration into the history, politics and, predominantly, the patient experience of the tick-borne disease."

--- Susan Morse, Washington Post

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