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St. Martin's Griffin
St. Martin's Press
ISBN: 9780312675417304 Pages
Barnes & Noble
A New York Times Top 10 Book of 2011
The Boy in the Moon is Ian Brown's powerful, honest, and emotionally complicated memoir of raising his son, Walker—one of only a few hundred people worldwide who live with an extremely rare genetic mutation.
Born with CFC (cardiofaciocutaneous) syndrome, Walker Brown is a mystery, as remote to his family as the moon. Unable to speak or swallow, compelled to hit himself, requiring surgeries, and round-the-clock care, he becomes the focus of his father's keen intelligence. An investigative journalist, Ian Brown traveled the globe, meeting with genetic scientists and neurologists as well as parents of similar children, seeking ways to reach—and perhaps cure—his son. As Brown becomes part of a community of families, he lets go of his self-blame and his desire to "fix" Walker, learning to accept the boy he loves, just as he is.
A New York Times Top 10 Book of 2011, The Boy in the Moon is an extraordinary memoir that explores the value and the meaning of every human life, through the eyes of one father, searching for his son.
THE BOY IN THE MOON (Chapter One)
For the first eight years of Walker's life, every night is the same. The same routine of tiny details, connected in precise order, each mundane, each crucial.
The routine makes the eight years seem...